Interstitial Cystitis Association

Interstitial cystitis (in-ter-stish-uhl sĭ-stī'tĭs), or as we call it, IC, is a condition that consists of recurring pelvic pain, pressure, or discomfort in the bladder and pelvic region, often associated with urinary frequency (needing to go often) and urgency (feeling a strong need to go). IC may also be referred to as painful bladder syndrome (PBS).

IC can affect anyone. More than 4 million people in the US have IC. Between 3 and 8 million women and 1 to 4 million men in the US may have IC. Estimating conservatively, that's 1 out of 77 people who have IC. Or, if further research supports the higher prevalence rate, that’s 1 out of every 26 people. That's more than the number of people with breast cancer, Alzheimer's disease, and autism combined. Children are also diagnosed with IC, but prevalence data is not known.

The Interstitial Cystitis Association (ICA) is the only non-profit health association solely dedicated to improving the quality of healthcare and lives of people living with IC. The ICA provides advocacy, research funding, and education to ensure early diagnosis and optimal care with dignity for people affected by IC. Together, we will achieve our mission of Conquering IC and Changing Lives!